On March 1, 2015, my 10 year old son was diagnosed with Type 1 Diabetes. This diagnosis has rocked our world. I want to share with others what we are going through as we go through it.

Monday, July 20, 2015

Taking on Disneyland with Type 1 Diabetes

Planning a trip to Disneyland can be a daunting task for any family, but for a family with a child with special needs, it can be almost terrifying. My 10-year-old son, Nathan, was diagnosed with Type 1 Diabetes on March 1, 2015. Without going into the not so fun details of his diagnosis, I will say that it has been a pretty big game changer in our home. After the initial shock and hospital stay, we were all set to go to his first endocrinologist follow up appointment. Along with the myriad of health questions, I had a big one that had been plaguing my mind. What about Disneyland?

We had booked our summer family vacation back in December when the kids started mentioning the mouse more and more often. This is a tradition of ours to visit the parks every other year. This year was the year, so we figured we would book early at the Disneyland Hotel for four nights and five days. This would give us three full days in the parks with a 3-day park-hopper. It was going to be perfect. Now, everything was changing. I felt guilty for worrying about our trip when all of my attention should have been on my son, but this trip was for him too. Thankfully, our doctor gave us the go ahead and even provided a note for us to be able to “bring our own food and not wait in line”.

OK, now I realize that his note seems like we were asking a lot, but the truth is that with T1D, Nathan must check his blood anywhere from four to twelve times a day. This means that if we are standing in the hour-long line for Space Mountain, midway through we may be checking Nathan’s blood. If low, he would then need to eat, drink, take glucose, etc., or even get out of line. This is no small task in a tight, crowded situation, so the note, we thought, would be amazing.

Before driving the eight hours to Anaheim from Sacramento, I first contacted the Disneyland Hotel who assured me there was a refrigerator in our room to house our extra insulin. They also informed me that I needed to go directly to City Hall on Main Street once we enter the park. It is at City Hall where all accommodations are made for people with special needs. In their Disney way, even on the phone, they made us feel welcome and understood.

Once at the park, we did as we were instructed. At City Hall, the cast member informed us that they could indeed accommodate Nathan’s needs. We could not skip the lines altogether, but what we could do was the next best thing. We could receive return times for the rides, allowing us to “wait in line, but in a more flexible environment”. Initially, I was confused, but the cast member cleared it all up. Strategically placed around the park, there were roughly five green umbrellas. These umbrellas housed cast members who could check wait times for rides and load one return time at a time onto our park tickets. This meant that if we wanted to ride Matterhorn at noon and the wait was 45 minutes, the cast member would give us a 12:45 return time on our ticket. At 12:45, we would head over to Matterhorn where we could enter the line and get on the ride within roughly five minutes. We could only get one return time at a time, so we had to plan accordingly, but this made for a much more relaxing experience.

On our third day entering the parks, I began to feel like perhaps we didn’t need the return times after all. Everything was going smoothly, and we were able to go on all of the rides we wanted. Then it proved to be worth every second of finding the umbrellas. I went to get a return time for a ride with my son and husband. While I stood in line to speak to the cast member, Nathan looked up and me and said, “Mom, can you hold my backpack?” Before I could answer, he dropped it on the ground and stumbled to my husband. Immediately, we went to check his blood glucose level. It had dropped to 61, and Nathan needed glucose tabs. As we found him shade to sit in, he slowly perked up, but needed some water as well. My husband went to the nearest vendor to purchase water. The cast member noticed my husband’s “We’re Celebrating” button and asked about it. My husband explained that we were celebrating being able to travel with our son who was recently diagnosed with T1D. He then explained our son’s current condition. Long story short, the cast member “made magic” for us. He handed my husband three bottles of water for our son to have. No charge.


Nathan recovered quickly and we were able to conclude our vacation without more incidents. We came home with fantastic memories, and we are eternally grateful for Disneyland’s accommodations. Without the return times, I fear what could have happened. More importantly, because of Disney’s exceptional customer service, my family was able to have an amazing vacation, and my son was able to enjoy each step of the way without worry or concern.